ASD: Support for Children and Families
ASD Resources
Neurodevelopmental Pathway [NDP] Support Pack: Autism Spectrum Disorder (ASD) [pdf] 1MB
Themes
Understanding Autism (ASD)
You may wish to explore some books which may help in considering how best to talk about this new diagnosis; examples include:
- I am Utterly Unique: Celebrating the Strengths of Children with Asperger Syndrome and High-functioning Autism by Elaine Marie Larson
- Different Like Me: My Book of Autism Heroes by Jennifer Elder .
An information sheet for the family regarding sharing an autism diagnosis is also available on the National Autistic Society website.
The website for Autism Education Trust has information in a range of formats, including film blogs of young people's experiences of receiving their diagnosis.
All Age Autism Support Service
Autism West Midlands
Contact for Families with Disabled Children
NAS Amazing Things Happen
A film about what autism is.
National Autistic Society
NHS England: Autism
Resources for Autism
Behaviour
Autism West Midlands
Understanding Behaviour in Autistic Children booklet.
Birmingham Children's Trust
Family Lives
Help with behaviour management. Telephone: 0808 8002222.
Youth Offending Service (Birmingham)
Telephone: 0121 464 0600. Based at Kingsmere, 18 Gravelly Hill North, Erdington, Birmingham, B23 6BQ.
Education
Autism Education Trust
AET is a not for profit programme led by two national autism charities – the National Autistic Society and Ambitious about Autism. Established and supported by the Department for Education, the AET promotes and supports partnerships throughout the education system to improve educational access, experience and outcomes for children and young people with autism.
Birmingham Communication and Autism
Resources and support for transitioning children and young people with autism back into their school/ setting after COVID-19 lockdown.
Birmingham Local Offer
This is Birmingham City Council's website for all of their SEN services including educational support and information. Here, you will find help, advice and information for children or young people with a Special Educational Need or Disability (SEND). You can also find information on Education Healthcare Plans (EHCP) and Communication and Autism Team (CAT) on this site. Please note, you can select the language displayed by using the drop-down in the top left-hand corner of the site.
Birmingham School Exclusions Team
Birmingham School Exclusions Team (0121 3032 685): learning support when children are excluded.
Birmingham Special Educational Needs and Disability Information, Advice and Support Service (SENDIASS)
Birmingham SENDIASS offers impartial information, advice and support to children and young people with special educational needs or disabilities.
Children’s Services – Education and Children Social Services
Birmingham Children's Services (0121 303 1888): information about Birmingham schools including school places and regarding Education, Health and Care Plans (EHCP).
Communication and Autism Team (Birmingham City Council)
Email the Communication & Autism Team that provide support for Birmingham schools and parenting support groups.
National Citizen Service
National Citizen Service (0800 197 8010): a four-phase programme for 15 to 17 year olds designed to provide new experiences.
The Prince’s Trust Birmingham – Personal development programme
Prince's Trust (0800 842 842): help for 13 — 25 year olds to work towards their personal goals.
Pupil and School Support Service (PSS)
The Pupil and School Support Service (PSS) has created a range of free resources to support parents with home education for SEND pupils and they can be contacted directly through the website.
Queen Alexandra College – a national college for learners with disabilities
Queen Alexandra College (0121 428 5050): support and guidance for students on the Autistic spectrum (including Asperger’s syndrome), with moderate to severe learning difficulties students, with physical disabilities and those with other needs.
School Transitions
Many autistic children find transitions difficult, especially the transition from primary to secondary school. Careful consideration should be given to what support they may need before, during and after the transition. This can be discussed with the SENCO at your current school and the SENCO at the new secondary school, once this has been identified. Transition support may include extra visits, visual supports, any summer school activities offered etc In relation to secondary transition, there is a very useful document entitled Children with Autism Accessing the Curriculum at Key Stage 3 and 4 , which can be downloaded free and contains subject-specific guidance (this can also be found by a Google search for the document title).
South and City Birmingham College
South and City Birmingham College (0121 694 5000 or 0800 111 6311): educational support for young people who have ADHD.
Females on the spectrum
The Girl with The Curly Hair by Alis Rowe. A project to support people on the autistic spectrum and those around them. Alis has written a series of books which include:
- Asperger's Syndrome in 13-16 Year Olds: by the girl with the curly hair: Volume 2 (The Visual Guides)
- Asperger's Syndrome and Anxiety: by the girl with the curly hair: Volume 8 (The Visual Guides)
- Asperger's Syndrome Meltdowns and Shutdowns: by the girl with the curly hair: Volume 3 (The Visual Guides)
- Asperger's Syndrome: Social Energy: by the girl with the curly hair: Volume 5 (The Visual Guides)
Financial support
The Birmingham Local Offer
Contact for Families with Disabled Children
Disability Living Allowance (DLA)
Telephone: 0800 1214600.
Family Fund
Can provide families with a once a year payment to help with the purchase of essential items such as a washing machine etc.
Turn2Us
A national charity that helps people in financial hardship access support services, benefits and charitable grants.
Food and diet
Autism West Midlands: Food and Diet
BCHC Occupational Therapy Service
Paediatric physiotherapy (PT) is the treatment, by physical means, of conditions seen in children, which affect or compromise normal childhood development.
General health
Birmingham and Solihull ICB:
Health information and advice.
Birmingham Forward Steps
Supplies information for all health and wellbeing services for children aged 0-5 in Birmingham. Including Health Visitors. A wide range of services for children. Telephone: 0121 466 6000 (main switchboard, ask for the service you require).
ERIC
National charity dedicated to improving children's bowel and bladder health.
Other NHS conditions
Other conditions that affect autistic people.
Physiotherapy Service
Some children with neurodevelopmental disorders may have physical conditions which require Physiotherapy input please see the Physiotherapy service pages for more details.
Mental health
Mental Health Support for Young People Leaflet
NCMH (National Centre for Mental Health)
This organisation brings together world-leading researchers to learn more about the triggers and causes of mental health problems. Their website gives information on conditions like ADHD and medication used to manage it.
Nip in the bud
Mental health charity that makes short films and fact sheets about conditions like ADHD.
Safety concerns
Children’s Social Services
Support for families. Contact 0121 303 1888 if a child or young person is at risk of harm.
National Society for the Prevention of Cruelty to Children (NSPCC)
Support for children, young people, parents, families and professionals.
POhWER
POhWER Advocacy Service (0300 4562370) ensures procedures are followed by health and social care services; offers advice and support with letter writing.
Sensory
Autism West Midlands
Autism and Sensory Issues resource.
BCHC Occupational Therapy
Paediatric occupational therapists support children and young people to carry out activities they need, want, or are expected to do, but are prevented from doing due to impairments, injuries or developmental conditions.
Hanen – Sensory Needs in Children with Autism
A short video.
National Autistic Association: sensory differences
Information, strategies and tips for coping with sensory differences
Suggested reading
- Understanding Your Child’s Sensory Signals: 3rd Edition by Angie Voss
- Uniquely Human by Barry Prizant
- An Early Start for Your Child with Autism: Using Everyday Activities to Help Kids Connect, Communicate, and Learn
- Autism: understanding behaviour by Caroline Hattersley
- It Can Get Better: Dealing with Common Behaviour Problems in Young Children by Paul Dickinson and Liz Hanna
- Autism: Talking About a Diagnosis – A Guide for Parents and Carers of Children with an Autism Spectrum Disorder by Rachel Pike
- My Family is Different: a W orkbook for Children with a Brother or Sister on the Autism Spectrum
- My Friend Sam: a Story About Introducing a Child with Autism to Nursery School by Liz Hannah
- Food Refusal and Avoid ant Eating in Children by Gillian Harris and Elizabeth Shea
Wellbeing
All Saints Youth Project
All Saints Youth Project (0121 4431842) falls under the umbrella of All Saints Community Projects, whose overall purpose is to provide services and facilities to improve the social welfare and health of people in Birmingham.
Anxiety Canada
Anxiety Canada provides self-help resources, programs and services for children, youth, adults and educators on anxiety.
Autism West Midlands Helpline
Birmingham Carers Hub: info and advice - telephone 0333 006 9711, email info@birminghamcarershub.org.uk.
Birmingham Connect to Support
Online advice guide and community directory.
From Birmingham With Love
Help for all families: leaflet with useful advice and links.
Other useful services
AccessAble
Identifies local amenities that are accessible to children with additional needs.
Tourettes Action
Tourettes support for young people.
Understood
An excellent resource for educators.
If you are worried about your child, please note this is not an emergency or mental health crisis service.
If you notice your child’s health is deteriorating or your child is in immediate danger, please call 999 or go to A&E.
If you need urgent help for your child's health call 111, contact your GP for further advice or contact Forward Thinking Birmingham Crisis line on 0300 300 0099 for issues relating to mental health.